November 21, 2013

A Little Update

In the next few weeks, Audrena will be evaluated as part of the transition from Birth to 3 to the school district for services. I am interested to see what the evaluation brings. She is putting 3-4 words together. However, I feel like her vocabulary is still lagging behind a bit, and she is still leaving out the beginning and ending consonants more often than not. For example, one time she might pronounce "puppies" crystal clear, and the next time it might be "uppies." "On" and "off" both lack the endings more times than not. We are working on it, and we've seen some improvement. Our current SLP through Birth to 3 has done a great job with Audrena, and we are seeing some really nice progress.

We have been using the Naida processors nearly exclusively now. It's new technology, and there have been some bugs. We kept losing mic protectors from one of her processors almost daily, and before long we noticed that the mic just wasn't crisp and clear like the other. So we switched back to the Neptunes and sent the Naida in for replacement. The replacement had issues of its own, giving random red lights or orange lights. The orange light would ordinarily mean the battery was low, but we found that it didn't matter what battery we put in, it would still show that the battery was low. So again we had it replaced. Audrena is hard on cords, so we have had to replace those a few times as well. We went through that with the Neptune cords, too. She is just rough with them. That's why it is SO important to be very conscious of your child's cochlear implant equipment. We constantly monitor things because if she is not getting good quality sound, she can't catch up as quickly with her speech and language.

The Naida processors can use the T-mic 2. We have heard they are generally not recommended for small children because there is no good way to monitor whether they are working. However, our Audiologist wanted us to use the T-mic 2 because it delivers the sound into the opening of the ear, where it naturally would be heard. Also, studies show better outcomes with T-mic usage than without. As closely as we monitor Audrena's equipment, that concerned us because we couldn't really check the T-mic's function, yet we wanted her to have the best possible listening opportunity. Dr. M. explained that she would be programming it to use 50% T-mic and 50% processor mic. That would really function as a 100%/100% arrangement because if the T-mic were to fail, Audrena would still get the sound through the processor mic. She could monitor the T-mic via booth testing outcomes by switching off the processor mic during testing and then testing again with it on. So we agreed to try it. We also think we have figured out on our own how to test the T-mic with it being programmed this way. When we do listening checks, we simply tightly cover the processor mic with our fingertip, and we can hear the sound only through the T-mic. We know the sound is coming into the T-mic because if you get close enough and the air from your mouth hits the mic, you can hear it just like wind. I'm not sure if that's in any way reliable, but it seems to be working for us.

We feel like Audrena is getting better sound with the Naidas. It may or may not be coincidence, but she has had a speech & language explosion since we have started using them. One thing we haven't quite figured out is how to keep them on without using toupe tape. Her glasses get in the way, so they don't sit perfectly on her ear. Tape seems to be the only solution, and it works well, although we sort of hate it. Her hair seems to get stuck in it no matter how careful we are. If anyone has a solution, I would love to hear it!

2 comments:

  1. Thank you for posting things to watch out for when we start using the Naidas. We have them, they are sitting on my dresser, but we are waiting for them to get programmed at our December Audiologist appointment. I think I will also ask the Audi to set up one Neptune program to use the T-mic, so we have that option as well. Thanks for the reminder to check microphones! I don't do it as often as I should!

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  2. We also have the T-comm for the Neptunes, but we did not have them programmed to use it yet. Our Audiologist cautioned us about it because (if I remember correctly) the volume control is easily bumped, so she said until Audrena is a little older and can manage her equipment a little better it would be better not to use it. She said when Audrena gets into school it will be a good option.

    Definitely watch the indicator lights on the Naidas. Some of the processors are having issues with a solid red indicator light. Audrena's right one did that, and we would have to take the battery off and put it back on to "reset" it. That was the processor that went bad on us, so I didn't have a chance to report that to AB, but I have heard of people having that problem. Also, there are no external beeps with the Naida, so when the battery gets low, or the headpiece gets bumped off, you won't necessarily know. It definitely requires more attention than the Neptune in that respect, but we feel like it is worth it. Plus, Audrena is pretty good about replacing the headpiece herself when it falls off.

    Good luck with your December appointment! Our next one is in January.

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